The AgingWell Hub, in partnership with the National Alliance for Caregiving, has created an integrated journey map for those caring for loved ones with Alzheimer’s and other dementias. The map can be used to identify opportunities to provide support and intervention for caregivers, and in turn, to benefit their care recipients. Multiple players in today’s health care system — a pharmaceutical company, health care provider, health-related technology provider, university, leading national nonprofits and more — came together to share expert knowledge and proprietary research to develop the map from the perspective of consumers.
In this case, the consumer is the unpaid family caregiver of an older adult with Alzheimer’s disease. The goal of the caregiver journey map is to capture the 360-degree experience of individuals caring for a loved one with Alzheimer’s or other serious cognitive impairment. Creating a common framework and terminology allows us to:
Identify and prioritize areas where caregivers need support
Drive alignment and collaboration across various players within the health care and community services ecosystem
Inform the development of technology-enabled solutions to benefit caregivers as well as their care recipients